Statistics on vCJD that are available from other sources apart from the CJD Unit in Edinburgh web site

From questions in the House of Commons in the UK: Date: 28 Mar 2000 From: "Ralph Lucas" Subject: [BSE-L] nvCJD onset and death data

The Lord Lucas asked Her Majesty's Government:

Whether they will place in the Library of the House, or on the Internet, full details of each of the persons who have died in the United Kingdom of new-variant CJD, showing (a) the date of death; (b) the age at death; © the age at onset of symptoms; (d) identified exposure to possible sources of infection; and (e) the genetic makeup of the prion gene. (HL1549) The Parliamentary Under-Secretary of State, Department of Health (Lord Hunt of Kings Heath): To protect patient confidentiality, precise details cannot be supplied but the following information may be helpful: Table 1; variant Creutzfeldt Jakob Disease (vCJD) cases in the UK, by month and year of death, date of onset of symptoms and date vCJD was confirmed. Date of death Date onset Date vCJD of symptoms confirmed*
 
05/95 06/94 09/95 
11/95 01/95 01/96 
11/95 12/94 01/96 
01/96 02/94 01/96 
01/96 07/94 01/96 
02/96 08/94 03/96 
02/96 03/95 03/96 
02/96 01/95 02/96 
05/96 08/95 03/96 
06/96 01/94 04/96 
06/96 01/95 07/96 
09/96 07/95 09/96 
11/96 12/95 * 
02/97 12/95 06/97 
02/97 12/94 07/97 
03/97 10/95 05/97 
03/97 03/96 02/97 
05/97 03/94 06/97 
05/97 03/96 09/95 
06/97 01/96 06/97 
07/97 11/96 10/97 
10/97 10/96 11/97 
12/97 01/96 09/96 
Date of death Date onset Date vCJD 
of symptoms confirmed* 
01/98 02/97 03/98 
03/98 09/95 05/98 
04/98 03/96 06/98 
05/98 05/96 05/98 
08/98 07/97 10/98 
08/98 07/97 10/98 
10/98 05/96 10/98 
10/98 10/97 11/98 
10/98 11/97 11/98 
10/98 07/97 11/98 
10/98 11/97 12/98 
11/98 11/97 02/99 
11/98 04/98 02/99 
11/98 03/98 * 
12/98 05/98 10/99 
12/98 08/97 02/99 
12/98 12/97 03/99 
01/99 02/98 02/99 
02/99 12/97 09/99 
02/99 12/97 06/99 
02/99 10/97 05/99 
07/99 05/98 07/99 
08/99 06/98 08/99 
08/99 01/99 11/99 
09/99 12/96 09/99 
10/99 07/98 01/00 
10/99 01/99 12/99 
11/99 05/98 12/99 
01/00 04/99 02/00 
*Cases not confirmed neuropathologically and therefore classed as "probable 
vCJD" 
Table 2; vCJD cases in the UK, by age at death
 
Age at death Number of cases 
0 - 9 0 
10 - 19 8 
20 - 29 23 
30 - 39 14 
40 - 49 3 
50 - 59 4 
59+ 0 
Total 52 
Forty nine of the fifty two 'definite' cases to date have been methionine/methionine homozygous at codon 129 for the prion protein, results on one of the remaining cases are still awaited, and in the remaining 2 cases no blood was taken on which to conduct the appropriate genetic tests. To date the National CJD Surveillance Unit has no record of a case of variant Creutzfeldt Jakob disease having arisen as a consequence of medical or surgical intervention.

MINISTER WARNS OF WAIT ON CJD FACTS

April 4, 2000 PA News

Andrew Evans, Lords Staff, PA News

Lord Hunt of Kings Heath, a health minister, was cited as saying in a response during a Lords debate that it may be "at least a year or two" before scientists can predict whether the variant of Creutzfeld Jakob Disease, the human equivalent of BSE, will become widespread in the UK population, and that there have been 67 confirmed or probable deaths in the past five years, nearly half of them occurring in people in their 20s, but it is not known how long the incubation period is. said statistical modellers were analysing current trends, adding, "But it may be at least a year or two yet before we are in a position to rule out a significant number of people eventually succumbing to the disease." Hunt was further cited as saying the first results of separate tests on some 18,000 tonsil and appendix samples, to test for the prevalence of CJD in Scotland and South West England, would be available later this month. Results from the first 2,000 samples would be reported to a meeting of medical and scientific experts, under the auspices of the Medical Research Council and the Health Department.


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